Thoughts On Down Syndrome

Dear Friends, Down syndrome is a great equalizer. It can happen to any parent during any pregnancy. It strikes without regard to race, religion, economic status or age. For almost all, the initial diagnosis comes as grim news. Hospital staff talk in hushed tones, family and friends tip toe about and acquaintances express sympathy. Most…

Dear Friends, It took us almost ten years to understand the wisdom in the title of the TV series “Life Goes On.” Our son Nick had not been born when the show was a viewer favorite, and we did not get to know Corky, Chris Burke’s character with Down syndrome, when it first aired. Had…

Dear Friends, The past twenty months we have been watching a race which will have profound impacts on all of us. As the disability community and the medical community speed toward their own, competing goals, we ask ourselves, “Who will win, and at what cost?” The Disability Community Never has the future looked brighter for…

Dear Friends, Our introduction to the disabilities world came with the birth of our son Nick almost eight years ago. Before then we had no real experience with people with disabilities, and we harbored many misconceptions. Most of the misconceptions cleared fairly quickly. But with clarity came the realization that society makes life harder than…

Dear Friends, Raising a child with Down syndrome is remarkably like raising any other child. When Nick first arrived we had to feed him, change diapers and do all those infant things. Now that he’s older, he plays and fights with his siblings, watches his favorite television shows and has a GameCube obsession. Nick does…