
Down syndrome is a great equalizer. It can happen to any parent
during any pregnancy. It strikes without regard to race, religion,
economic status or age. For almost all, the initial diagnosis comes
as grim news. Hospital staff talk in hushed tones, family and friends
tip toe about and acquaintances express sympathy. Most look at their
newborn with confusion - as if this baby ushered away the baby they
were “supposed” to deliver and snuck into its place. If we only
knew in that moment of despair what joy and love awaited us, what
a different welcome we would craft.
Perk #1 – Lifetime Membership to Exclusive Club - When you have
a child with Down syndrome, you become part of an exclusive club.
Before sharing a single word, fellow members understand your deepest
fears and frustrations, hopes and dreams. They appreciate your near
hysterical delight when your child takes his first step or makes
her first best friend. You share tears and laughter, resources and
information, play dates and late night talks. You classify your
friends into “Down syndrome friends” and “other” friends. On some
days, you’re not sure which group knows you best.
Perk #2 – Immediate Shift in Values – When you have a child with
Down syndrome, you are forced into an immediate shift in values.
The traditional measures of wealth, power and achievement take a
back seat to kindness, determination and generosity. You spend more
time looking for the gifts in others and less time focusing on who
is smartest or first. You become less tolerant of prejudice and
bristle when you hear the “R” word. These changes make you a better
person, a better role model for your children.
Perk #3 – An Adventure - When you have a child with Down syndrome,
you embark on an uncommon journey, an unexpected adventure. Though
400,000 people in the United States have Down syndrome, only a few
of us (the lucky ones) know someone with Down syndrome before giving
birth. This adventure leads some of us to slow down, some to reevaluate
life and some to find God; all of us grow. It adds texture to our
lives and eventually leaves us wondering what we would do without
our son or daughter. Love, admiration and grit replace hesitation
and ignorance. We would have it no other way. The Great Stories
we share tonight serve to document some of the wonders that Down
syndrome brings. We hope they help erode old stereotypes and pave
the way for a community ready to embrace the diversity and gifts
of people with Down syndrome. Once again, we are humbled by your
support and generosity. Enjoy the evening.
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